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Keynote Speaker:

Prof. Lukoye Atwoli

Professor of Psychiatry and the Dean of the Aga Khan University Medical College, East Africa

Dr. Fiona Baine-Savanhu (PhD)

Senior Medical Scientist, Division of Human Genetics, National Health Laboratory Service &

University of the Witwatersrand, South Africa

Ibrahima Barry, Guinea

HD family Member- Family story

Dr. Abdoulaye Bocoum (MD)

University of Sciences, Technics and Technologies of Bamako, Mali

Xi Cao

Founder and President of the Chinese Huntington´s Association


Dr. Maouly Fall

Movement Disorders Neurologist,

Assistant Professor  Cheikh Anta Diop University in Dakar, Senegal


Dr. Karen Flynn

Associate Professor, Samford University & UAB Huntington’s Disease Centre of Excellence


Dr. Leora Fox (PhD)

Assistant Director of Research and Patient Engagement,

Huntington’s Disease Society of America



Dr. Carlos Othon Gulengar

Resident Neurology, University of Conakry, Guinea

Dr. Rob Haselberg (PhD)

Vereniging van Huntington, the Netherlands

Dr. Juzar Hooker (MB, ChB, MMed, DCN)

Consulting Neurologist, tertiary care referral private practice

Aga Khan University Hospital, Nairobi

Lewis Kaplan

CEO Huntington’s NSW ACT, Australia

Prof. Amanda Krause (BSc, MB BCh, BScHons, PhD)

Professor of Medical genetics, Head of the Division of Human Genetics,

University of Witwatersrand, South Africa

Muthoni Mate

Founder the Cancer Café, Senior Research Manager at Center for Public Health and Development in Kenya

Prof. Anne Muigai (BEd,MSc and PhD)

Professor of Genetics, and Deputy Vice-Chancellor, Academic Affairs & Research

National Defence University-Kenya

Evelyne Waithira Müller

Psychologist at the TelefonSeelsorge in Bielefeld Germany

Founder of Fulfilled Life

Mr. Emmanuel Munene

Partnerships and Engagement Manager, Huntington Disease Africa

Mr. Maina Munene, Kenya

HD family Member- Caregiver

Dr. Mendi Muthinja (PhD)

Founder and Chair Huntington Disease Africa


Em Muthiora

HD family Member

Jaque Mutombo

HD family Member


Dr. Mie Rizig, MBBS, MSc, PhD, MRCP

Senior Clinical research fellow at University College London (UCL), Institute of Neurology,

Queen Square, London, United Kingdom

Dr. Dilraj Sokhi

Associate Professor of Neurology, Aga Khan University Medical College

Dr. Valerie Suski

Director, HDSA Center of Excellence, University of Pittsburgh Medical Center

Rhoda Wagaki

Counselling Psychologist, Founder and Chair Suruvi – Care for Caregivers