Welcome Address

Dr. Mendi Muthinja, PhD –  Founder Chair, Huntington Disease Africa

Keynote Address

Prof. Lukoye Atwoli – Professor of Psychiatry and the Dean of the Aga Khan University Medical College, East Africa

SESSION 1

HD GENETICS

Huntington disease and Huntington disease-like 2 in the South African population

Prof. Amanda Krause – Professor of Medical genetics, Head of  the Division of Human Genetics, University of Witwatersrand, South Africa

Workshop 1

Let’s talk wellness

Rhoda Wagaki, Counselling Psychologist, Suruvi

Molecular Genetic Studies of Huntington disease in the South African Population

Dr. Fiona Baine-Savanhu – Senior Medical Scientist, Division of Human Genetics, National Health Laboratory Service & University of the Witwatersrand, South Africa

Workshop 1 – Part 2

Let’s talk wellness

Building up capacity for Huntington disease research in Africa:

The African Research Consortium on Huntington’s disease (ARCH)

Dr. Mie Rizig – Senior Clinical research fellow at University College London (UCL), Institute of Neurology, Queen Square, London, United Kingdom

Workshop 2

How to stay positive during tough times

Evelyne Waithira Müller,  Psychologist at the TelefonSeelsorge in Bielefeld Germany, Founder of Fulfilled Life

Workshop 2 – Part 2

How to stay positive during tough times

SESSION 2

HD AND THE CLINIC – A PHYSICIANS TALE

Quality of life and care over the years

Dr. Juzar Hooker – Consulting Neurologist, Aga Khan University Hospital, Nairobi, Kenya

Huntington’s Disease in Senegal

Dr. Maouly Fall – Movement Disorders Neurologist, Assistant Professor at Cheikh Anta Diop University in Dakar, Senegal

Communication and Swallowing in Patients with Huntington’s Disease

Dr. Karen Flynn – Associate Professor, Samford University & UAB Huntington’s Disease Center of Excellence

New and Emerging Trends in HD Standard of Care – The Multidisciplinary Clinic

Dr. Valerie Suski – Director, HDSA Center of Excellence, University of Pittsburgh Medical Center

Clinical and Genetic aspects of Huntington’s disease in the Malian population

Dr. Abdoulaye Bocoum, MD – University of Sciences, Technics and Technologies of Bamako, Mali

Access to HD therapeutics, in Guinea

Dr. Carlos Guelngar – Department of Neurology, National Hospital Ignace Deen, University of Conakry, Guinea

Challenges of Managing Neurogenetic Disorders in Kenya: Illustrative cases

Dr. Dilraj Sokhi – Associate Professor of Neurology, Aga Khan University Medical College

LUNCH BREAK

Poster Session

SESSION 3

HD FAMILY EXPERIENCES

My Caregiver Story

Mr. Maina Munene –

HD family Member- Caregiver

My Family Story

Mr. Ibrahima Barry – HD family Member

Compassion Fatigue

Rhoda Wagaki – Counselling Psychologist, Founder Director Suruvi-Care for Caregivers

Roundtable

Huntington’s disease advocacy challenges in different parts of the World

Leora Fox
Rob Haselberg
Emmanuel Munene
Lewis Kaplan
Xi Cao
Muthoni Mate
Mendi Muthinja

SESSION 4

HD, NEW FRONTIERS IN THERAPEUTICS

What is CHDI and HD Therapy focus areas

Dr. Simon Noble, PhD – Director, Scientific Communications, CHDI Management/CHDI Foundation

Huntington’s Disease Coalition for Patient Engagement (HDCOPE)

Dr. Leora Fox, PhD – Assistant Director of Research and Patient Engagement, Huntington’s Disease Society of America

Access to healthcare: Implications for rare diseases in a developing country set up

Prof. Anne Muigai – Professor of Genetics, and Deputy Vice-Chancellor, Academic Affairs & Research, National Defence University-Kenya

HD Whitepaper

Dr. Mendi Muthinja, PhD – Founder Chair, Huntington Disease Africa